Epidermolysis bullosa (EB) is a rare and painful skin disorder that affects the top layer of skin, which causes it to become very fragile.

 Medically reviewed by Dr Rehaam Ali Khan 


 EB is a genetic condition that occurs when the skin lacks type VII collagen or other proteins essential for healthy skin. This can cause skin blisters, sores, open wounds and scarring.

EB affects individuals in many different ways. Some people with mild cases may have few or no symptoms, while others may experience severe blistering all over their body, leaving them in constant pain and making it difficult to move. EB can also lead to secondary health complications such as infection and even death if not properly managed.

In order to manage EB effectively, treatment often requires medical intervention, lifestyle changes and special products. Medical treatment typically involves antibiotics and other medications for infections and pain relief, wound care and physical therapy for mobility. In addition, people with EB should wear protective clothing to protect their skin from further damage, eat a balanced diet rich in vitamins A and C for better wound healing and try natural remedies such as aloe vera gel to reduce inflammation and soothe irritated skin.

Despite advances in medical care, there is still no cure for EB; however, research continues in hopes of one day finding a treatment that can bring relief to those living with this debilitating condition. With ongoing care and support from friends and family members, individuals with EB can live fulfilling lives despite their struggles.